Friday, 20 January 2012

Was the very beginning the start?

Ok so since my last post, well, I SAID i was going to give an account of possibly what may have, could have, did go down to lead me to where I am at with this PND.
Apologies.
Not so good with this blogging business, i tend to blog more in my head than online.....my bad.
But Im here....and Ive already been to my phsycologist. Twice.
Yay me. More on that later :)

Pregnant. 
Wow ok.
Well we started trying, what, 5 weeks ago? I guess it only takes 'one time'. I was somewhat banking on the horror stories of possibly a year or so of trying......but there I was. Calling my Fiance back from the pub to deliver the 'news'.
After seeing his face, then his whole world, light up, I knew it was going to be great and very much a good thing! 
Pregnancy was good, no major hiccups. The other pregnant hosties at work were busy talking about their little 'hims' and 'hers' inside them. 
I had an 'It'.
We wanted a surprise.....and a surprise we got.
Harley James was born on Easter Sunday 2010. Blue. Lifeless.
There were doctors and nurses everywhere, counting, all they did was count....
'Four....Six.....nine....'
I have never prayed to God so hard and fast in my life. 
'....eleven....twelve....'
I look at my Husband, why are they counting? Is it a boy or a girl?
'Boy' The nurse says nervously over her shoulder.
'....Thirteen.....Fourteen...Ok common team fourteen minutes and still not breathing...'
The room froze. Then spun. 
If Nathans face wasnt already white enough he now looks like hes about to faint.....just when I think my chest is too tight to breath he cried.....My little miracle cried.


The next few hours was fuzzy. Visitors, cuddles, attempting to feed. He was in the special care nursery so the midwives could keep an eye on him. Every few hours they would come get me to feed. He wasnt feeding to well. Just blinking.
Alot.
Next thing I know Im walking in to see him to try and feed again at 4am and the nurse tells me that the blinking is actually my baby having seizures.
The lack of oxygen to his brain was causing the seizures and if he wasnt transferred to the childrens hospital asap long term damage could be on the cards....if it wasnt already.


Harley was in the Neonatal Intensive Care unit for 10 days. Seizuring. 
Every drug thought possible was getting pumped into him. 


All I wanted to do was hold my 'It'.
I didnt know him. All I knew I needed to do was fight for him.
Its the weirdest feeling.....
I never got that "I took one look at him and I fell madly in love with my baby and he became my whole world and now i am complete" feeling people speak of. And I REALLY wish mums would stop saying it, because its OK and completely NORMAL not to feel that way. Its like someone handing you a foreign object and expecting you to fall madly and deeply in love with it and you dont even know what it is, what its like and what on earth to do with it.
I truly believe if this expectation was removed from mums-to-be minds, alot of future problems would be prevented.
Anyhow.
So here I am fighting for this baby who is my son. 
A lot of tests and MRI's later the doctor tells us he has an 85% chance of having cerebral Palsy. And that 25% of the left hand side of his brain has brain damage.
Now, for anyone who has ever wondered what its like sitting in that room on a show like RPA and getting news like that, its just like the TV. Except you think your watching it.
Because its not happening to you. Or your baby, so thank you doctor for your opinion, im going to walk out of your office with my head held high knowing you must be wrong and im not walking out of this hospital with anything less than a perfectly healthy baby, thank you.
So I decide to break down in the hall instead.
Nathan picks me up, and the pieces (as always) and holds my hand as we go to tell the awaiting family.
I took one look at my sister and ran.
I ran into the parking lot, past the stream of cars waiting, and into some nearby bush and yelled my freaking guts out. I cried as loud and as long as I could.
Until I had nothing left.
But faith.


We got to take Harley home, no seizures, no meds, no symptoms of CP but had to keep a watchful eye that he didnt seizure again and that we would only know, if the brain damage was going to effect him in any way, was if he didnt reach his milstones eg Smiling, sitting up ect in a reasonable time.
I have never cried so much when he smiled.....then rolled. No mother ever takes these for granted but I can say that appreciation for these events was an understatement.


Harley was a hard child. Didnt sleep, couldnt feed, Had Silent reflux, Colic, Eczema, you name it, he had it. He hated being left alone, wasnt interested in toys and had to be amused by me personally all hours of the day and was just one huge handful. Full on 24/7. 
The lack of sleep was getting to me, as it does to all mums, but nothing i couldnt take in my stride. I was doing remarkably well considering 'what id (apparently) been through' so everyone said.


Thats when the odd stuff started happening.
Not every day, not even every week. But my patience was paper thin....I could snap at any second.
Not at my husband. No not even when anyone was at home, when I least expected it.
Now, im not a violent person. I would NEVER hurt anyone and definately not my son. But when I did occasionally 'snap' I didnt see it coming. Thats the scary part.
Id be patting him off to sleep in his cot and he'd start up winging again. In a tenth of a second I punched the mattress of the cot and swore at him. It suprised me that much I didnt even know that it was me. As soon as I did it Id feel an ENORMOUS amount of guilt and confusion.
Id promised him and myself that would never happen again.
Then I started punching walls in these 'mind snap' moments. One time it wasnt even at my son. I simply couldnt get the washing bag open so I started stabbing it with a pair of scissors....what the? How did the scissors even get in my hands?
The biggest snap was when Harley screamed for an hour in the car on the way home from a friends place. I had to wind the windows down and sing as loud as i could to get the thought of leaving him on the side of the road out of my head. I still remember that day so vividly. The thought of leaving him there made me feel so much better.
These were literally only a handfull of times over the course of 7 months. Not too dangerous. But enough to know it was completely out of charactor and not ok.
But it stopped. 
Life became normal and in a routine. Easy even.
Time to think about baby number 2......







Friday, 23 December 2011

Remembering what its like to fly.

Was driving along the highway this evening, windows down, old school music blaring, not a care in the world....how it used to be.
I felt so free.....and ALIVE.
I was loving life at that very moment. Something that now days, feels like a far off distant memory, most days.
It was good to be me again.




















If only I could be me with my kids.
I feel so trapped and surrounded by anxiety. 
So much Noise.


Moments captured in time, watching the kids grow, explore, laugh.
Moments that people dream about are unfolding in front of my eyes within my beautiful family. But my head drums into me...."I hate my life, my kids are hard work, painful even. They scream, wow they dont stop screaming....remember the good old days, wouldnt you prefer to be back there than here?"
I dont keep a thing from my husband. I tell him what my head says, the pain in his eyes is hard to look at. He doesnt see it like that and he is desperate for me to see how incredible life really is with them.
He hugs me.
Everything is going to be ok.


Now that psychologist appointment I was going to, well, they cancelled on me, the morning of. A possible turning point my husband and I were ready to conquer. Not happening.
Lucky I kept the January one.
Between now and then, I am going to start Blogging how this all came about, well, my personal account of events that may lead to a possible explanation of how this supposed PND came about.
Its going to be raw.
And brutily honest.

Wednesday, 7 December 2011

Its 1250am.
Its raining outside and I have my 11 week old son huddled on my chest like a Koala.
Our home is silent.
A rare occurance in this house and whats even rarer?
Its finally silent in my head.
The humming if a 3 day old headache is slowely fading...
Regardless of how tired I may be tomorrow I feel I need to sit here in the moment. Who knows where my head will be at tomorrow. I hope I dont have to call my husband back home from work...again.
I just want to be able to trust myself with my boys.


The silence fades...
And is replaced by tears.

The humming is coming back....

Part of me cant wait to see this psychologist for the first time next week.
The other part is so scared...